Now celebrating its 10th anniversary, hae day 🙂 is an awareness campaign that unites the hereditary angioedema (HAE) community on May 16, 2021, and brings greater understanding of the disease to the general public, healthcare professionals, healthcare decision makers and industry representatives around the world.
HAE is a rare hereditary disease that can cause attacks of swelling, and often pain, in specific parts of the body, including the stomach, hands, feet, arms, legs, genitals, throat and face. Depending on the severity of the disease, some people will have many attacks each month, while others will go months without an attack.
Hope for the Future
Optime Care is highlighting how a patient-first approach impacts the burdens of patients living with HAE by tailoring a proactive service experience for each patient.
We also want to point to the considerable positive progress that has been made on behalf of these patients. Case in point, BioCryst is a biotech company that focuses on clinical research for the development of medicines for rare diseases, including HAE, and shares clinical trial data to advance science and serve patients and providers.
This year, Optime Care is also sharing care coordinator testimonials about their experience working with HAE patients.
Care Coordinator Testimonials:
“My life has been touched in so many ways by the patients I have had over the years, but never quite the way that my HAE patients have. They motivate and encourage me, and they have helped me grow into the best care coordinator I can be.” – Liz, Care Coordinator, Optime Care
“Hearing a patient say I’ve taken a burden off their shoulders or how much they appreciate the efforts I put in is amazing. Patients have reported being able to regularly see their facial features now or being attack-free for the first time in their lives. I am so grateful to be a part of this change.” – Rochelle, Care Coordinator, Optime Care
To learn more about how our patient-first approach minimizes the daily impact of living with orphan and rare disorders and tailors a proactive service experience for each patient, visit here.