You never get a second chance to introduce your first episode. So, we wanted to start Rare Voices with someone who has granted opportunities for being heard to so many patients, Candace Lerman.
Candace, a self-identified disease warrior, is an unconventional advocate for creating a more fulfilling life experience for patients with chronic and rare illnesses. Her work is sprawling — from courtrooms, to policy-maker offices, to living rooms and the virtual world, she has empowered so many, exposed the shortcomings of our healthcare systems, and created new pathways to improved care.
More About Candace
Candace Lerman, Esq., is an attorney, consultant, and author of the rare disease blog, RareCandace.com. She earned her Juris Doctorate with a concentration in Health Law at the Shepard Broad School of Law at Nova Southeastern University in Fort Lauderdale, Florida and a certificate in Healthcare Compliance from Seton Hall University School of Law. In addition, she holds a Bachelor’s and Master’s degree in International Affairs from Florida State University. A rare disease patient, Candace researched and repurposed a drug to put her blood disorder into remission, twice. She works closely with members of Congress on federal healthcare policy, and serves on the board of Our Odyssey, a group dedicated to empowering young adults with rare and chronic illnesses. Candace is Of Counsel to the Lerman Law Firm, assisting clients in healthcare, compliance, and corporate law. In May 2019, she launched the ITP Patient Driven Research Initiative to help develop better treatments for patients living with her rare disease.