Category

Podcast

Podcast
July 22, 2021

Rare Voices S2E6: Effie Parks, Podcast Host, Once Upon a Gene, Mother to a Rare Disease Warrior

Rare Voices · S2E6: Effie Parks, Podcast Host, Once Upon a Gene, Mother to a…
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Podcast
May 24, 2021

Rare Voices S2E5: Sanath Kumar Ramesh, OpenTreatments CEO and Rare Disease Dad

 Rare Voices · S2E5: Sanath Kumar Ramesh, Founder of OpenTreatments Foundation Being rare is,…
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Podcast
May 10, 2021

Rare Voices S2E4: Dr. Jennifer Mulle, Rare Disease Researcher

Rare Voices · S2E4 - Dr, Jennifer Mulle, Genetic Researcher In the years that I…
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Podcast
March 29, 2021

Rare Voices S2E3: Dr. Jeffrey Miskoff, Critical Care Physician

 Rare Voices · S2 E3: Jeffrey Miskoff: Critical Care Physician The past year has…
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Podcast
March 15, 2021

Rare Voices S2E2: Jessica Ballinger, Rare Disease Caretaker and Influencer

Rare Voices · S2 E2: Jessica Ballinger: Rare Disease Caretaker and Influencer Almost all of…
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Podcast
February 26, 2021

Rare Voices S2E1: Steve and Beth Aselage, Father & Daughter BioPharma Experts

Rare Voices · S2E1: Steve and Beth Aselage: BioPharma Experts One of our guest we…
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Podcast
February 19, 2021

Announcing Rare Voices Season Two: Onward

Rare Voices · Announcing Rare Voices Season Two: Onward We started this show a few…
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Podcast
February 12, 2021

Rare Voices S1E7: Donovan Quill and Michelle Hefley, cofounders of Optime Care

 Rare Voices · S1E7: Donovan Quill and Michelle Hefley, cofounders of Optime Care For…
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Monica Weldon, Founder of Bridge the Gap – SYNGAP Education and Research Foundation
Podcast
November 20, 2020

Rare Voices S1E6: Monica Weldon, Bridge the Gap: SYNGAP Education and Research Foundation

Rare Voices · S1E6: Monica Weldon, Founder of Bridge the Gap: SYNGAP Education and Research…
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David Penake, CEO at Saol Therapeutics
Podcast
November 2, 2020

Rare Voices S1E5: Dave Penake, Saol Therapeutics

Rare Voices · S1E5: David Penake, Saol Therapeutics Anyone who has invested their time in…
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